top of page
Search

cloak of invisibility

  • Writer: that.endo.girl
    that.endo.girl
  • Dec 8, 2020
  • 2 min read

Yes, I made a Harry Potter reference. Now that I have your attention.


So, without giving too much away, I do have a fair bit of medical and anatomical knowledge about the human body and how it works. **DISCLAIMER: I AM NOT A MEDIAL DOCTOR AND MY OPINION DOES NOT MEAN YOU SHOULD NOT SEEK MEDICAL ATTENTION OR ADVICE WHEN REQUIRED!!!** Now, why is this knowledge relevant? Well, sometimes it is good and sometimes it is bad. Sometimes it helps me understand why my body is reacting to medications or environmental changes in certain ways, further aiding in my ability to make more educated decisions about the right choices for my body. However, sometimes it is not so good if I let it slip out to certain medical professionals that I have this knowledge because they seem to get grumpy or defensive - especially if I am not clear as to the reasons why I have this knowledge. (professional reasons) But, recently I have felt this overwhelming sense of frustration with the Canadian medical system. I am frustrated about the lack of complete transparency between a doctor and patient about their treatment options. Just because a patient may not be able to fully express their needs or concerns does not mean the doctor should not be held responsible for patient education. Especially with endometriosis. I am finding that here in Canada, there seems to be a HUGE DELAY in understanding of this very complex condition. I am frustrated that we are so far behind other countries such as Australia and Europe in scientific knowledge about endometriosis. Why doesn't Canada put more resources towards research and education regarding endo? Well I do not know.


But here's what I do know. I know we have the ability and opportunity to speak out and share what good is happening regarding endometriosis. We can choose how we spend each moment and where we put our time and resources.


With that positivity in mind, I am happy to share that Canada is starting to do some research that I am very proud of! The Endometriosis Clinic at McMaster University from Hamilton, Ontario is currently conducting a research study on "Self Management strategies used by Canadian women with endometriosis." Even better, they are still looking for participants, anywhere in Canada! The survey can easily be completed on your smart phone, tablet or computer and will only take approximately 20 minutes to complete. Please click here to support their research! Please share with other #endowarriors. Sharing is caring! 💛 💛 💛 This is a great starting point.


"What else?!?" says the inner voice in my head. Well, get connected. Follow me on 'the social'. I'm on instagram only right now. Facebook will...come. Haha. As being a #endowarrior myself, I still have my good days and bad. But check out all the other awesome #endowarriors I am following and their stories! I really recommend checking out Endometriosis Australia's Instagram Page. So great. Lots of excellent educational information there!


Overall, be brave, be kind, be you. The more we stand up and speak out, the less invisible we will be. So, shhhhhhhh....let's talk about it!



ree

 
 
 

Recent Posts

See All
What?!? You too!!!

Opening Scene: two thirteen yr olds, a backyard pool, lying on big floaties, feeling fly. WHAT?!? YOU TOO!!! Oh, my goodness. What a...

 
 
 

Comments


Post: Blog2 Post
  • Instagram

©2020 by That Endo Girl.

bottom of page